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Byron Shire
March 2, 2021

Shining a light on Lyme Disease

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Magenta Appel-Pye

Mullumbimby

Thank you to Michael McDonald for his article last week on recognising tick-borne Lyme disease.

Can you imagine living in Australia and having a disease that the institutions tell you doesn’t exist in Australia? That’s enough to cause depression even if it wasn’t one of the many symptoms of this insidious disease. I have suffered from Lyme for 12 long, painful, depressing years watching my health and finances being eroded away. Each year was worse because I was undiagnosed. Not to mention spending every last cent trying to find an answer and trying all the treatments that everyone insisted would help, whether they were a doctor or just someone trying (unsuccessfully) to help.

I have not been able to work to my full capacity for years. Try being a music teacher whilst suffering extreme headaches! The medical establishment in Australia let me and other sufferers down by denying us proper and quick diagnosis and therefore correct, immediate treatment. Made worse by well-meaning friends who tell you that you won’t get sick every time someone coughs or sneezes near you if you just ‘think positively’. People just don’t realise about the importance of the immune system.

By being put in the category of ‘hypochondriac’ we get no sympathy, understanding or help. It is time this debilitating disease was taken seriously by the government and the medical profession and those of us suffering from it (and it seems there are quite a few) were helped back to good health and a decent quality of life.

Australian support groups are available online at www.lymedisease.org.au but perhaps we need one in our area. If you are interested contact me at [email protected]


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