It was nice to read that the Byron lighthouse was illuminated red last week to commemorate World AIDS Day. But spare a thought for those in our region that have a similar debilitating auto-immune disease that, if undiagnosed, can lead to death. A disease with so much mystery and controversy that it is not even officially acknowledged to exist in Australia, though clearly it does.
I, for one, have Lyme disease, caused by tick bites I got in Main Arm, and know many others who have been diagnosed. Not to mention many who remain undiagnosed because most doctors aren’t Lyme-aware and therefore don’t even think it could be the cause of the myriad illnesses their patient is presenting with.
Those of us suffering from this horrific bacterial disease usually receive no help from the government and little help from the medical establishment, unless you’re lucky enough to find a doctor who has studied an unacknowledged disease (usually because they have it themselves), and little support, sympathy or help from family and friends as no-one understands just how serious, painful and debilitating this disease is.
I can’t put into words how much this sucks!
This year they lit Niagara Falls green for Lyme Awareness Week. Perhaps the good people who organise such things might light up the Byron Bay lighthouse to give some support, awareness and recognition to a disease that is becoming a small epidemic in this region.
Be aware of ticks this summer and if you are bitten and have a bad reaction, get to the doctor and get on antibiotics and kill it before it kills you!
Magenta Appel-Pye, Mullumbimby