At any given moment around 500,000 people, mostly children, live with Epidermolysis bullosa (EB) a group of rare medical conditions that result in easy blistering of the skin and mucous membranes.
EB Research Partnership Australia (EBRPA) are a not-for-profit charity organisation based in Melbourne dedicated to raising funds and awareness of this life-threatening and debilitating disease.
This Saturday, April 10, EBRPA we will be holding their annual ‘Come Say Hi’ fundraising event at the Beach Hotel, Byron Bay which will be hosted by Karl Stefanovic.
EBRPA are hoping to engage local patrons with this event, raising much awareness and funds, and accommodate many interstate supporters of the charity also. It’s going to be a fun event!
Like many other charities, businesses and individuals, the last 12 months has had an enormous impact on EBRPA – the ‘Come Say Hi event will be the group’s first Charity Fundraising event as we bounce back from Covid-19.
For more information about EB visit: ebresearch.org.au.